Join us for the upcoming WCG Patient Forum Focus Session, “Voices Transforming the Science and Practice of Inclusive Clinical Care and Research." This virtual event will bring together patient advocacy experts who will share their experiences and insights on how the actions of dedicated caregivers, clinicians, and other advocates bring about fundamental change to benefit underserved communities.

The session will focus on significant challenges and successes in clinical care and research. Speakers will share their stories in the following:

  • Mentoring clinical caregivers and community members to increase a diverse workforce.
  • Collaborating to usher in a better era of rare disease research through endpoint validation and accelerated approval pathways for rare disorders.
  • Parent-driven preclinical research.
  • Access barriers in focus for change.

Through years of advocacy, better ideas have gained firm footing and are driving momentum to enable more trials, more participation, and a future where more medical needs are met. Don't miss this opportunity to hear from the experts and learn about the latest advancements in inclusive clinical care and research. Register now to secure your spot.

About the Patient Forum Focus Sessions

The WCG Patient Forum Focus Sessions provide timely, focused discussions of the biggest challenges and successes in clinical research, with the patient's perspective at the forefront.

Speakers

Mark Dant
Mark Dant
Rare Disease Parent
Volunteer Executive Director, Ryan Foundation | Former Board Chair, EveryLife Foundation for Rare Disease
Nasha Fitter
Nasha Fitter
Rare Disease Parent
Co-founder & CBO, Ciitizen | Co-founder & CEO, FOXG1 Research Foundation
Jaliza Johnson
Jaliza Johnson
Nursing Professional Development Specialist II, Nursing Mentorship Program Coordinator
Stanford Health Care, Center for Education & Professional Development
Steve Smith
Steve Smith
CEO, SteveSmithPlans LLC
Facilitator, WCG Patient Forum