Join us for the next Patient Forum Focus Session dedicated to empowering “Breakthrough Science and Community Participation.” 

This insightful event is happening on August 22 from 1 to 1:45 pm EDT and will bring together patient advocate leaders and experts in the engagement of minority and other patient communities to discuss specific breakthrough drug approvals in gene editing and immunotherapy.  

We’ll explore: 

• Cell and Gene Therapy: Recent FDA approvals for cutting-edge treatments using gene editing that promise significant relief from the severe pain disorder Sickle Cell Disease, and immunotherapy for melanoma, including the first gene therapy medicines potentially curative for a hereditary condition. 

• Proactive Patient Community Engagement to support the research and clinical trials leading to such breakthrough therapies.  

• Best Practices in Minority Community Engagement to Overcome Serious Bias that affect sickle cell patients in hospitals, particularly in pain management.  

• Guidance to Diversify Trial Enrollment and provide inclusive access to the benefits of research and to approved treatments for all patients with any painful, serious, and life-threatening disorders. 

• Patient and Family-Lived Experiences with serious and life-threatening disorders and access to benefits of medical treatment.  

Why Attend? 

• Gain valuable insights from patient advocates, patients and their family members, and professionals devoted to advanced research in patient-centric health care and drug development.  

• Learn about the latest FDA-approved gene therapies and their potential to revolutionize patient care across many diseases.  

• Understand the issues and best practices to overcome biases in clinical settings to ensure equitable and inclusive treatment for all patients. 

• Hear from family members with years of experience in clinical care and research advocacy.  

Who Should Attend? 

• Patients and families affected by diseases in need of breakthrough treatment 

• Healthcare professionals and researchers 

• Clinical care professionals learning about diversity and inclusion in clinical settings, patients with pain disorders or cancers, new scientifically innovative treatments, sickle cell disease and melanoma 

• Patient advocates and patient advocacy groups 

• Minority community advocates and stakeholders 

• Public health professionals and students 

• Regulatory and pharmaceutical industry stakeholders 

Join us for an empowering session that highlights challenges and new breakthroughs that offer the possibility of relief for patients and their families.